Jacquelien Noordhoek

Jacquelien is CEO of the Dutch CF Foundation (NCFS). This organization sets the CF research agenda in The Netherlands and abroad, with a research program that is patient driven. Her organization developed the concept of institutionalized patient participation.

She is chairwoman of the Dutch CF-Registry and president of CF Europe. She is working on her PhD with the subject of institutionalized patients participation.

Because of progress that is made in treatment of the disease, she is very much involved in personalized medicine, the technology of organoids and developments in health research.